Neurofibromatosis Association of Ireland

The Neurofibromatosis Association of Ireland (NF Ireland) was founded in 1985.
NF Ireland provide a comprehensive range of services including a 24-hour Helpline, literature on the condition and information but its primary aim is to inform sufferers and their families of the disorder, supporting them and letting them know they are not alone with the condition.

Neurofibromatosis (NF) is a genetic condition. This means it belongs to a group of health conditions that can be passed on in families from one generation to the next through the process of genetic inheritance.

NF is caused by a mutation in one of the genes. About half of the people who have NF have no family history. In other words, it has occurred “out of the blue” with no-one else in the family being affected.

This is called a spontaneous gene mutation. The other half of people will have inherited NF from their mother or father.

Fund Raising
To organise and support fundraising activities to realise the aims of the Association

To lobby government and state bodies to provide financial support towards mutually agreed goals of the NF Association

Carmichael Centre, North Brunswick St, Dublin 7, Ireland, D07 RHA8